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The politics of service user labour

A Brilliant Zine about the politics of service user labour

The lived experience workforce: The importance of respectfully embedding lived experience at all levels of service design and production

"📌This article also demonstrates that organisations can: 🌱Purposefully and successfully employ a significant portion of their workforce from the lived experience community 💡By doing so, improve the nature of service design and production 🌱Demonstrate pride in employing staff with lived experience at all organisational levels 💡Share leadership with people with lived experience that can be an enriching process producing visionary leadership and improved outcomes. "

✨Reporting lived experience work✨

💠Working with people with lived experience in mental health research carries a wide range of benefits. 💠Benefits are perhaps especially important in mental health research, where biomarkers are often not the most relevant measure of conditions 💠Psychiatry has an uncomfortable history of ethical transgressions and damaging power dynamics in which people have been coerced, experimented on, and targeted by eugenic practices, and coercive practices continue today; 💠This history heightens the urgency of listening to people's experiences connected to mental health or ill health and redressing the balance of power in the creation of knowledge, healthcare practices, and policy. 💠Although a few journals require involvement to be reported, and some researchers have begun voluntarily including such information in articles, 💡Lived experience involvement and leadership are described using a range of terms, and work in this area encompasses various methodologies and philosophies as it continues to develop. 💡Given both the variety and importance of this work, it should be approached with just as much methodological rigour as any other aspect of research 💡That rigour should be clearer and more systematic reporting within the scientific literature. 💡The Lancet Psychiatry will be requesting that authors provide information on whether and how people with lived experience were involved in or led their research, 💡Including reporting on the following: whether they were involved in shaping 🌱The research question and study design, 🌱Choosing outcome measures, 🌱Planning recruitment, 🌱Working as lived experience researchers, 🌱Assessing the burden of interventions, 🌱Writing the study, 🌱And delivering the dissemination of its findings. 📌Studies without lived experience involvement would need to acknowledge this as a limitation. 📌A panel of reviewers with lived experience related to mental health, which was established in partnership with the The McPin Foundation 📌The Lancet Psychiatry is planning to recruit more members of the public with lived experience "

✨Survivor voices - turning pain onto power✨

"📌A Charter for Organisations Engaging Abuse Survivors in Projects, Research & Service Development 🌱The charter outlines 7 principles for good survivor engagement and 7 areas of good practice guidance 💡Aimed at encouraging active, safe and meaningful involvement of abuse survivors in: 🌱Research and development 💡Services and projects 🌱Development of policy and practice standards 💡Events, training and conferences. 🌱When and how to use the charter: 💡As a discussion starter when shaping any projects, 🌱Research, 💡Services and events engaging with survivors as a guide and checklist for research ethics 🌱Applications involving survivors 💡As a planning and evaluation tool for organisations who are seeking to be intentionally survivor-safe, 🌱Survivor-sensitive, survivor-empowering and trauma-informed as a tool for survivor activism and survivor-led projects."

✨Recovering Adult Acute Psychiatric Inpatient Wards: Creating Recovery-Focused, Trauma-Informed and Neuro-Inclusive Culture, Relationships and Practice✨

"✴️There is so much to unpack here we are just making a start! 📌One particularly poignant section for us is around the use of language (on page 29). ✴️Here's the content of one of the sections around co-production 💡Shared decision-making, coproduction and improving the culture of acute inpatient units 🌱Shared decision-making in relation to individual treatment and support 🌱Co-production in the design and delivery of services 🌱Co-producing cultural change in acute ward settings Read the full briefing paper here 👇 https://lnkd.in/etmxU_xT 🧠Interested to know your thoughts on this one. ⭕Felt very topical after listening to 'Patient 11' ⭕ Which uncovered that only six NHS trusts demonstrated that they were following sexual safeguarding protections within inpatient wards. ⭕Painful and life-altering experiences like theirs are why we need to stay conscious of the impact of negligence, abuse and lacking basic human compassion. 🔘Another space where higher levels of peer support could influence at ground level and offer invaluable perspective. "

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