Privacy Policy

Policy Contents

1. Introduction
2. Data Collection
3. Legal Basis for Data Processing
4. Data Use and Processing
5. Data Sharing and Disclosure
6. Data Security
7. Data Retention
8. Rights of Data Subjects
9. Cookies and Tracking Technologies
10. Changes to the Privacy Policy
11. Contact Information
12. How to complain
13. Appendix A: Glossary of Terms

1.Our contact details  

Name:  LEAD – Lived Experience Advisory Directory CIC 

Registered address: 4 Vauxhall Terrace, Walter Street, Bristol, England, BS31SX

Dated: July 2024 

Who are we? 

LEAD transforms work for individuals with lived/living experience and their employers. 

We are committed to safeguarding the privacy of our members and website visitors; subscribers to our newsletters, attendees at our events and others whose data we hold. We want you to feel confident about how any personal information you share will be looked after or used. 

In this policy, we explain the type of personal information we collect, how and why we collect it, how we use it, and how we keep it secure.

1. Introduction

1.1 LEAD (Live Experience Leaders) is committed to protecting and respecting your privacy. This policy outlines how we collect, use, and protect your personal data in compliance with the General Data Protection Regulation (GDPR) and the Data Protection Act 2018.

1.2 This policy applies to all personal data provided to us, whether by individuals accessing our services, participating in our programs, or visiting our website at livedexperienceleaders.com.

2. Data Collection

2.1 Personal Data Collected:

• Identity Data: Name, title, date of birth, gender.
• Contact Data: Address, email address, phone number.
• Technical Data: IP address, browser type, operating system, and other technology on the devices used to access our website.
• Usage Data: Information about how you use our website, products, and services.
• Marketing and Communications Data: Your preferences in receiving marketing from us and your communication preferences.
• Special Category Data: Health information, ethnic origin, and other sensitive data, only where necessary and with explicit consent.

2.2 Methods of Data Collection:

• Direct interactions (e.g., filling out forms, participating in our programs).
• Automated technologies or interactions (e.g., browsing our website).
• Third-party sources (e.g., social media platforms, partners).

3. Legal Basis for Data Processing

3.1 We process personal data based on one or more of the following legal bases:

• Consent: You provided explicit consent for us to process your data.
• Contractual Necessity: Where processing is necessary for the performance of a contract with you.
• Legal Obligation: Where processing is necessary for compliance with a legal obligation.
• Legitimate Interests: Where processing is necessary for our legitimate interests or those of a third party, provided your rights and interests do not override these interests.

4. Data Use and Processing

4.1 We use personal data to:

• Provide and improve our services and programs.
• Manage our relationship with you.
• Communicate with you, including sending updates, newsletters, and promotional materials.
• Process and manage your participation in our events and programs.
• Ensure the security and integrity of our services and website.
• Research from survey responses
• Media and research from social media responses (anonymised and non person identifiable
• Comply with legal and regulatory obligations.

5. Data Sharing and Disclosure

5.1 We may share your personal data with:

• Service Providers: Third parties who provide services to us, such as IT and system administration services, event management, and marketing.
• Professional Advisers: Lawyers, bankers, auditors, and insurers who provide consultancy, banking, legal, insurance, and accounting services.
• Regulatory Authorities: HM Revenue & Customs, regulators, and other authorities who require reporting of processing activities in certain circumstances.
• Third Parties: In the context of a sale, merger, or acquisition, or with your explicit consent.

5.2 We require all third parties to respect the security of your personal data and to treat it in accordance with the law. We do not allow our third-party service providers to use your personal data for their own purposes.

6. Data Security

6.1 We implement appropriate technical and organizational measures to protect your personal data against unauthorized access, alteration, disclosure, or destruction.

6.2 Access to your personal data is limited to those employees, agents, contractors, and other third parties who have a business need to know.

7. Data Retention

7.1 We retain personal data only for as long as necessary to fulfil the purposes we collected it for, including for the purposes of satisfying any legal, accounting, or reporting requirements.

7.2 To determine the appropriate retention period, we consider the amount, nature, and sensitivity of the personal data, the potential risk of harm from unauthorized use or disclosure, the purposes for which we process the data, and whether we can achieve those purposes through other means.

8. Rights of Data Subjects

8.1 Under GDPR, you have the following rights regarding your personal data:

• Access: Request access to your personal data.
• Correction: Request correction of inaccurate or incomplete data.
• Erasure: Request deletion of your personal data.
• Restriction: Request restriction of processing your personal data.
• Objection: Object to processing your personal data.
• Portability: Request transfer of your personal data to you or a third party.
• Withdrawal of Consent: Withdraw consent at any time where we are relying on consent to process your data.

8.2 If you wish to exercise any of these rights, please contact us using the contact details provided below.

9. Cookies and Tracking Technologies

9.1 Our website uses cookies and similar tracking technologies to enhance your experience, analyze website usage, and assist in our marketing efforts.

9.2 You can set your browser to refuse all or some cookies or to alert you when websites set or access cookies. If you disable or refuse cookies, some parts of our website may become inaccessible or not function properly.

10. Changes to the Privacy Policy

10.1 We may update this privacy policy from time to time. Any changes will be posted on this page, and where appropriate, notified to you by email or through our services.

10.2 Please check back frequently to see any updates or changes to our privacy policy.

11. How to complain 

If you have any concerns about our use of your personal information, you can make a complaint to us at info@livedexperienceleaders.com, write to us at:  

4 Vauxhall Terrace, Walter Street, Bristol, England, BS31SX

You can also complain to the ICO if you are unhappy with how we have used your data. 

The ICO’s address:             
Information Commissioner’s Office 
Wycliffe House 
Water Lane 
Wilmslow 
Cheshire 
SK9 5AF 

Helpline number: 0303 123 1113 

ICO website: https://www.ico.org.uk

Appendices

Appendix A: Glossary of Terms

• Personal Data: Any information relating to an identified or identifiable natural person.
• Processing: Any operation or set of operations performed on personal data, whether or not by automated means.
• Data Subject: The individual to whom the personal data relates.
• Controller: The entity that determines the purposes and means of processing personal data.
• Processor: The entity that processes personal data on behalf of the controller.
• Consent: Freely given, specific, informed, and unambiguous indication of the data subject’s wishes by which they signify agreement to the processing of personal data.
• Legitimate Interests: The interests of our organization in conducting and managing our business to enable us to offer the best services and experience to our users.

This privacy and GDPR policy for LEAD outlines our commitment to protecting personal data, ensuring compliance with GDPR, and providing transparency in our data processing activities.